Thursday, September 9, 2010
Thursday, July 29, 2010
PODS Angels DOWN SYNDROME WALK & PICNIC
Time October 23 · 9:00am
Location Paul Sanborn Park
2310 SE 3rd Street
Cape Coral, FL
More Info PODS Angels is a Down syndrome not for profit family support group supplying newborn packets to all the local hospitals free of charge, on line and in person support, mini conferences and supportive events with the annual Holiday party a huge success.
The walk has a registration fee per family or per person Early registration recommended.
Cape Coral’s newest neighborhood park is 3 acres and features a large pavilion with BBQ grill..., basketball courts, covered playground area, and perimeter pathway for walking, exercising, etc. Extensive landscaping, including the only remaining banyan tree in Cape Coral, makes this an excellent place to stop and enjoy the great outdoors.
Walk details:
Early T-shirt Pick-up
All pre-registered walkers may pick up their t-shirt on Saturday, October 16th from 10 am to 3 pm at the event site.
Register by September 15th and save $5! Plus be guaranteed a t-shirt.
DAY OF WALK
If you are pre-registered, go directly to registration to check-in and pick up your t-shirt.
If you are registering on event day, please bring your completed registration form and payment to the registration tent. T-shirts will be distributed on a first-come first-served basis as supplies last
Saturday, October 23, 2010 at Paul Sanborn Park, Cape Coral, Florida.
SW FL PODS Angels; Step Up 4 DOWN SYNDROME Walk is a wheel-friendly 1-mile pledge walk to increase public awareness and acceptance, and raise funds to support programs and services for people in our community with Down syndrome.
Whether you have Down syndrome, know someone who does or just want to show your support, come and join the Walk. Anyone can be a buddy! This is what it's all about! Meet your Buddy (person with Down syndrome) or team in front of the pavilion at 9:40 am for the opening ceremony, then walk.
During the walk, teams will be judged on spirit. So create motivational signs or banners with your Buddy or team name to show off during the walk. Spirit judges will be located in the park around the track to select the winning teams or Buddies. Return to the pavilion at 12:00 pm for the presentation of the 2010 Spirit Award winners.
Please join us so we can reach our goal for this year's walk – $10,000.00! Support the STEP UP 4 DOWN SYNDROME Walk – a special celebration of life, love, and the full potential of all within our community.
Event Details
8th Annual SW Florida Walk
Click Here for Event Details PDF
Location:
2310 SE 3rd Street
Cape Coral, Florida 33990 mapquest
Parking available at the Park
Day of Event Schedule:
Time Event
9:00 a.m. Registration and Pre-Walk activities
9:40 a.m. Opening Ceremonies
9:50 a.m. Warm-up
10:00 a.m. Walkers will head off onto course
11:00 a.m. to 1:00 p.m. Post Event Activities
Planned course:
Travel approximately one mile around park course. Our wheel-friendly course at the park is perfect for family and friends! Pre-Event and Post-Event activities will take place throughout the park.
(insert map)
Registration:
Registration is necessary! You can register as an individual, family or as part of a team that you can start yourself or join another. Register Here and feel free to contact the SW FL PODS Angels at 239-872-4778 if you have any questions or need assistance.
Entertainment:
Inflatables
mascott ??? costume
???
???
and much much more
Event Reminders:
The STEP UP 4 DOWN SYNDORME Walk will take place rain or shine! Sorry, no refunds will be given.
Registration Forms must be postmarked by October 07, 2010
Free activities for toddlers to teenagers including: carnival games, crafts, face painting, young athletes’ area, obstacle course, karaoke, a dance party and more. Food and beverage will also be available for purchase.
Dance Party 12:00 PM – 1:00 PM
Dance …Dance ….Dance…..Dance your shoes off in front of the stage or try your voice at karaoke. If dancing or singing is not your thing…sit back, relax and be prepared to be entertained.
Silent Auction and Raffles 11:00 PM - 12:30 PM
Silent auction and raffle items include team baskets of varying themes, tickets to shows and sporting events, memorabilia, baskets of cheer, and more. Raffle tickets are 1 for $2 or an arm's length for $10. Auctions and raffles close at 12:30pm. Winners will be posted at 12:45 and are welcome to pick up their prizes at that time.
Donations of silent auction items and raffle baskets are always welcome. Contact swflpodsangels@msn.com to donate.
BE INCLUDED... BE INVOLVED... BE INSPIRED!
Location Paul Sanborn Park
2310 SE 3rd Street
Cape Coral, FL
More Info PODS Angels is a Down syndrome not for profit family support group supplying newborn packets to all the local hospitals free of charge, on line and in person support, mini conferences and supportive events with the annual Holiday party a huge success.
The walk has a registration fee per family or per person Early registration recommended.
Cape Coral’s newest neighborhood park is 3 acres and features a large pavilion with BBQ grill..., basketball courts, covered playground area, and perimeter pathway for walking, exercising, etc. Extensive landscaping, including the only remaining banyan tree in Cape Coral, makes this an excellent place to stop and enjoy the great outdoors.
Walk details:
Early T-shirt Pick-up
All pre-registered walkers may pick up their t-shirt on Saturday, October 16th from 10 am to 3 pm at the event site.
Register by September 15th and save $5! Plus be guaranteed a t-shirt.
DAY OF WALK
If you are pre-registered, go directly to registration to check-in and pick up your t-shirt.
If you are registering on event day, please bring your completed registration form and payment to the registration tent. T-shirts will be distributed on a first-come first-served basis as supplies last
Saturday, October 23, 2010 at Paul Sanborn Park, Cape Coral, Florida.
SW FL PODS Angels; Step Up 4 DOWN SYNDROME Walk is a wheel-friendly 1-mile pledge walk to increase public awareness and acceptance, and raise funds to support programs and services for people in our community with Down syndrome.
Whether you have Down syndrome, know someone who does or just want to show your support, come and join the Walk. Anyone can be a buddy! This is what it's all about! Meet your Buddy (person with Down syndrome) or team in front of the pavilion at 9:40 am for the opening ceremony, then walk.
During the walk, teams will be judged on spirit. So create motivational signs or banners with your Buddy or team name to show off during the walk. Spirit judges will be located in the park around the track to select the winning teams or Buddies. Return to the pavilion at 12:00 pm for the presentation of the 2010 Spirit Award winners.
Please join us so we can reach our goal for this year's walk – $10,000.00! Support the STEP UP 4 DOWN SYNDROME Walk – a special celebration of life, love, and the full potential of all within our community.
Event Details
8th Annual SW Florida Walk
Click Here for Event Details PDF
Location:
2310 SE 3rd Street
Cape Coral, Florida 33990 mapquest
Parking available at the Park
Day of Event Schedule:
Time Event
9:00 a.m. Registration and Pre-Walk activities
9:40 a.m. Opening Ceremonies
9:50 a.m. Warm-up
10:00 a.m. Walkers will head off onto course
11:00 a.m. to 1:00 p.m. Post Event Activities
Planned course:
Travel approximately one mile around park course. Our wheel-friendly course at the park is perfect for family and friends! Pre-Event and Post-Event activities will take place throughout the park.
(insert map)
Registration:
Registration is necessary! You can register as an individual, family or as part of a team that you can start yourself or join another. Register Here and feel free to contact the SW FL PODS Angels at 239-872-4778 if you have any questions or need assistance.
Entertainment:
Inflatables
mascott ??? costume
???
???
and much much more
Event Reminders:
The STEP UP 4 DOWN SYNDORME Walk will take place rain or shine! Sorry, no refunds will be given.
Registration Forms must be postmarked by October 07, 2010
Free activities for toddlers to teenagers including: carnival games, crafts, face painting, young athletes’ area, obstacle course, karaoke, a dance party and more. Food and beverage will also be available for purchase.
Dance Party 12:00 PM – 1:00 PM
Dance …Dance ….Dance…..Dance your shoes off in front of the stage or try your voice at karaoke. If dancing or singing is not your thing…sit back, relax and be prepared to be entertained.
Silent Auction and Raffles 11:00 PM - 12:30 PM
Silent auction and raffle items include team baskets of varying themes, tickets to shows and sporting events, memorabilia, baskets of cheer, and more. Raffle tickets are 1 for $2 or an arm's length for $10. Auctions and raffles close at 12:30pm. Winners will be posted at 12:45 and are welcome to pick up their prizes at that time.
Donations of silent auction items and raffle baskets are always welcome. Contact swflpodsangels@msn.com to donate.
BE INCLUDED... BE INVOLVED... BE INSPIRED!
Saturday, March 27, 2010
SAVE THE DATE: MAY 8th
We are offering a long over due local mini conference for families with children having Down syndrome. May 8th in Naples, FL The location has not been confirmed although within the week we will have this information. It will start at 2 pm with the opening guest speaker: Blogger Mom Kelle Hampton sharing how she learned her child's diagnosis.
Early Steps 0 to 3 year olds services and supports
Advocate for 3 to 5 year olds school/medical...
This will be a series of over the life span...
JUNE meeting will be held in South Ft Myers moving the topic to Elementary School years.
JULY IS NATIONAL DOWN SYNDROME CONFERENCE IN ORLANDO
August: HANG ON! Middle/High School years
September: Transition to the workforce and prep for October, National Down Syndrome Awareness month
OCTOBER: National Down syndrome Awareness Event.
Early Steps 0 to 3 year olds services and supports
Advocate for 3 to 5 year olds school/medical...
This will be a series of over the life span...
JUNE meeting will be held in South Ft Myers moving the topic to Elementary School years.
JULY IS NATIONAL DOWN SYNDROME CONFERENCE IN ORLANDO
August: HANG ON! Middle/High School years
September: Transition to the workforce and prep for October, National Down Syndrome Awareness month
OCTOBER: National Down syndrome Awareness Event.
Thursday, January 14, 2010
Down syndrome
Named after John Langdon Down, the first physician to identify the syndrome, Down syndrome is the most frequent genetic cause of mild to moderate mental retardation and associated medical problems and occurs in one out of 800 live births, in all races and economic groups. Down syndrome is a chromosomal disorder caused by an error in cell division that results in the presence of an additional third chromosome 21 or "trisomy 21."
Babies with Down syndrome often have hypotonia, or poor muscle tone. Because they have a reduced muscle tone and a protruding tongue, feeding babies with Down syndrome usually takes longer. Mothers breast-feeding infants with Down syndrome should seek advice from an expert on breast feeding to make sure the baby is getting sufficient nutrition.
Hypotonia may affect the muscles of the digestive system, in which case constipation may be a problem. Atlantoaxial instability, a malformation of the upper part of the spine located under the base of the skull, is present in some individuals with Down syndrome. This condition can cause spinal cord compression if it is not treated properly.
Medical care for infants with Down syndrome should include the same well-baby care that other children receive during the first years of life, as well as attention to some problems that are more common in children with Down syndrome. If heart, digestive, orthopedic or other medical conditions were identified during the neonatal period, these problems should continue to be monitored.
Children with Down syndrome may be developmentally delayed. A child with Down syndrome is often slow to turn over, sit, stand, and respond. This may be related to the child's poor muscle tone. Development of speech and language abilities may take longer than expected and may not occur as fully as parents would like. However, children with Down syndrome do develop the communication skills they need.
Parents of other children with Down syndrome are often valuable sources of information and support. Parents should keep in mind that children with Down syndrome have a wide range of abilities and talents, and each child develops at his or her own particular pace. It may take children with Down syndrome longer than other children to reach develop mental milestones, but many of these milestones will eventually be met. Parents should make a concerted effort not to compare the developmental progress of a child with Down syndrome to the progress of other siblings or even to other children with Down syndrome.
Questions and Answers about Down Syndrome
Is Down syndrome a rare genetic disorder?
Down syndrome occurs in 1 in 800 births.
Do only older women give birth to babies with Down syndrome?
Researchers have established that the likelihood that a reproductive cell will contain an extra copy of chromosome 21 increases dramatically as a woman ages. Therefore, an older mother is more likely than a younger mother to have a baby with Down syndrome, but older mothers account for only about 9% of all live births each year and 25% of Down syndrome births.
Are all people with Down syndrome severely retarded?
Most people with Down syndrome have IQ's that fall in the mild to moderate range of retardation. Some are so mildly affected that they live independently and are gainfully employed.
Can people with Down syndrome receive proper care at home?
Home-based care and community living give them the opportunity to socialize and benefit from such interactions.
Should all children with Down syndrome be placed in special education classrooms?
While federal laws have been established to insure that all handicapped children have access to public education, children with Down syndrome can and have been included into a regular classroom.
Is there a cure for Down syndrome?
Researchers have identified the genes that cause the characteristics of Down syndrome and are working to further develop mouse models, at varying stages of development, in order to enhance their basic understanding of Down syndrome and facilitate the development of effective interventions and treatment strategies.
Please contact us today if you wish to adopt a child with Down Syndrome
Babies with Down syndrome often have hypotonia, or poor muscle tone. Because they have a reduced muscle tone and a protruding tongue, feeding babies with Down syndrome usually takes longer. Mothers breast-feeding infants with Down syndrome should seek advice from an expert on breast feeding to make sure the baby is getting sufficient nutrition.
Hypotonia may affect the muscles of the digestive system, in which case constipation may be a problem. Atlantoaxial instability, a malformation of the upper part of the spine located under the base of the skull, is present in some individuals with Down syndrome. This condition can cause spinal cord compression if it is not treated properly.
Medical care for infants with Down syndrome should include the same well-baby care that other children receive during the first years of life, as well as attention to some problems that are more common in children with Down syndrome. If heart, digestive, orthopedic or other medical conditions were identified during the neonatal period, these problems should continue to be monitored.
Children with Down syndrome may be developmentally delayed. A child with Down syndrome is often slow to turn over, sit, stand, and respond. This may be related to the child's poor muscle tone. Development of speech and language abilities may take longer than expected and may not occur as fully as parents would like. However, children with Down syndrome do develop the communication skills they need.
Parents of other children with Down syndrome are often valuable sources of information and support. Parents should keep in mind that children with Down syndrome have a wide range of abilities and talents, and each child develops at his or her own particular pace. It may take children with Down syndrome longer than other children to reach develop mental milestones, but many of these milestones will eventually be met. Parents should make a concerted effort not to compare the developmental progress of a child with Down syndrome to the progress of other siblings or even to other children with Down syndrome.
Questions and Answers about Down Syndrome
Is Down syndrome a rare genetic disorder?
Down syndrome occurs in 1 in 800 births.
Do only older women give birth to babies with Down syndrome?
Researchers have established that the likelihood that a reproductive cell will contain an extra copy of chromosome 21 increases dramatically as a woman ages. Therefore, an older mother is more likely than a younger mother to have a baby with Down syndrome, but older mothers account for only about 9% of all live births each year and 25% of Down syndrome births.
Are all people with Down syndrome severely retarded?
Most people with Down syndrome have IQ's that fall in the mild to moderate range of retardation. Some are so mildly affected that they live independently and are gainfully employed.
Can people with Down syndrome receive proper care at home?
Home-based care and community living give them the opportunity to socialize and benefit from such interactions.
Should all children with Down syndrome be placed in special education classrooms?
While federal laws have been established to insure that all handicapped children have access to public education, children with Down syndrome can and have been included into a regular classroom.
Is there a cure for Down syndrome?
Researchers have identified the genes that cause the characteristics of Down syndrome and are working to further develop mouse models, at varying stages of development, in order to enhance their basic understanding of Down syndrome and facilitate the development of effective interventions and treatment strategies.
Please contact us today if you wish to adopt a child with Down Syndrome
Sunday, October 19, 2008
UNDER CONSTRUCTION
I will have this site up and going very soon. For today follow our family blog pringleadoptionjourney
Subscribe to:
Comments (Atom)
